← Return to Ankylosing spondylitis: anyone else?

Discussion
kelsey1 avatar

Ankylosing spondylitis: anyone else?

Spine Health | Last Active: 1 day ago | Replies (96)

Comment receiving replies
Profile picture for jdp3 @jdp3

I have similar problems with no fusions of my spine, but am positive for HLAB7, abnormal RA factor, and mild positive results for small fiber neuropathy. I also have weird pain at my inner heel, SI joints, and left knee tendinopathy. I also have binocular vision issues, chronic cervicogenic headache and migraine with aura that sometimes comes and lasts a month. I'm dying for someone to connect the dots for me. I also have Tarlov cysts that have been reported on MRI imaging, as well as "quiet" MS. I'm starting to thin the Tarlov cysts are responsible for a lot of the unexplained pain, particularly the burning feet pain and pain in sitting, but at least one doctor suspects ankylosing spondylitis. I"m currently seeing a naturopath who has prescribed low dose naltrexone. I'm hoping this helps with at least some of the neuroplastic pain that has emerged from all the other pains being around for so long. It's difficult to find someone who is willing to listen to the whole story, much less read all the reports and view the images. There should be a way to make an appointment with a physician whose job it is to put it all together. I supposed places like the Mayo clinic do that, but that would not exactly be easy to access. In the meantime, I'll keep seeing specialists, learning as much as I can (putting my science degrees to good use), and trying "bandaid" treatments like LDN and PT.

Jump to this post


Replies to "I have similar problems with no fusions of my spine, but am positive for HLAB7, abnormal..."

@jdp3
You should get some pain relief from LDN but it can take up to 2 months before seeing the full benefit.