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Becky, Volunteer Mentor avatar

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Jan 5 7:07pm | Replies (414)

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Profile picture for vlazorenko @vlazorenko

Hi Becky,
I’m currently at a very interesting stage with my illness. For the past month, I haven’t been taking any steroids at all — only various supplements such as Ashwagandha, Rhodiola Rosea, Omega, Curcumin, Alpha-Lipoic Acid, and actually quite a few others. During this whole time, I’ve been stable, and I can feel my energy gradually coming back.

As the mentor of this group, have you heard of similar cases? I should also add that I built this plan myself, without any doctor’s support, so I can’t recommend the same path to anyone. But it seems to me that if my remission continues longer, my case might actually be very interesting from a scientific perspective.

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Replies to "Hi Becky, I’m currently at a very interesting stage with my illness. For the past month,..."

@vlazorenko Well, I don’t think I have ever…! So, you’ve not said anything to your doctor? Well, I would suggest several things: 1. Keep a careful daily journal of what supplements you are taking, 2. Do a head to toe assessment of yourself-brain included, 3. Make a written list of the supplement and carry it in your wallet, in case of an emergency and 4, talk with your doctor about what you have done. They may say, “it’s your life, do what you want,” and they not. Just make sure it’s what you really want to do.
What would make you change your mind?