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Frustrated and confused about my meningioma
Brain Tumor | Last Active: Sep 20 1:40pm | Replies (26)Comment receiving replies
How did you get anyone to listen to you and nd not just tell you that “it’s just a meningioma, they aren’t cancerous”. After 3 years of “just a meningioma” (right front cortex) that went from 8mm to to 3cm, and a TIA, they just found another spot in my. Left side that they confirmed was hydrocephalus and increased atrophy. I have a terrible time with recall and remembering words, it’s taken me 10 minutes just to write this. I hate getting blown own off 😢
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To be honest right now I am not sure the doctors are listening to me. My old PCP said he believed that the episode in August 2024 was a TIA or mini stroke. At that time the CT didn’t show any mass. But when I started having more seizures and non stop migraines they did the MRI and it was an incidental find of the meningoma. My neurologist told me it’s not a tumor but a meningoma is a tumor. But the neurosurgeon said yup it’s a tumor but most of the time benign and unless it starts growing he wants to leave it be and recheck it in a year. I applied for SSDI last year due to other issues but added this diagnosis in and was denied. This just keeps getting more frustrating. I had a point when I started this reply but now I have no clue what it was. I can’t focus on anything but yet SSDI said you are fine and don’t qualify for help
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Thank you, welcome to the group. Don't feel like you're getting blown off. Some doctors bedside manners suck.i can help with a couple of things if you want. Just reply to this message