Hi Deb—hearing about a new or growing nodule can be really unsettling, and it’s easy to spiral after reading worst-case scenarios online. For a little perspective: I’ve been living with stage 4 EGFR-mutated adenocarcinoma for five years. Because mine spread to the brain, I’ve had brain MRIs, CT scans, and bloodwork every three months. Three different times, my very thorough oncologist saw a nodule change—up to about 50% growth over three months—and sent me straight for a PET scan. Each time, the follow-up showed the nodule was benign, and the next scan showed it had shrunk.
What’s helped me is mindset of: “Until my oncologist tells me otherwise, I don’t have cancer.” It’s saved me a lot of unnecessary worry over the years.
Lastly, three-month imaging is a common follow-up interval, and your team can always adjust sooner if something needs a closer look. The fact that they don't believe they have to is encouraging. In other words, they are watching you carefully—and that’s a good thing. Hang in there, and try to give yourself some breathing room while the experts do what they do best.
I am curious what your treatment journey has been over these years with your mutation Adenocarcinoma.
Currently I have stage 4 METX14 mutation ( less than 1% found as a mutation ) and have had a difficult medication/radiation journey. Thanks