← Return to Long Covid Fatigue - Exhausting Physically and Mentally

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Hello , I just came in this support group and wanted to know if anyone else experienced the same as I do after COVID it seems so. I had Covid twice as well the worst one was the first time in 2022 my O2 levels dropped so far I went into a mental decline. I was taken to the hospital by ambulance I do not remember much but it was horrible I was in the hospital for about 10 tens on oxygen my body would not breath on its own finally it did but it was slow going, I left the hospital after I had learned to walk again it was horrible to say the least I have been off of work now from a vehicle accident and three hip surgeries because of it. With the mental issues from the Covid and the fact I too can’t do much either I was an avid golfer and bicycle rider I try so hard to get motivated but I’m so exhausted as well . Reading up on my low o2 levels I do believe I have brain damage of some kind I have not been the same at all. People like my family and friends do not understand what I am going through that is why I reached out to this group and Mayo Clinic to perhaps help me move on with my life , I also stay in my easy chair more than one should . Anyway thanks for reading this any advice let me know
Thanks Frank

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Replies to "Hello , I just came in this support group and wanted to know if anyone else..."

This is a great place as the people posting on here, including myself, do understand. Do you see a doctor? I have found that my medicine for ADHD (Vyvanse) and Duloxetine (for depression) as well as Naltrexone have helped with my ability to function during the day. The problem, as you know, is that I get post-exertion malaise and fatigue and it is worse in the mornings. I have heard that physical therapy, low exertion exercise helps. For me that is just doing things that need to be done (laundry, dishes, etc.) This is a frustrating and disabling virus. My doctor and I are just treating the symptoms so I can function. I am better than I was 3 years ago, but still struggle daily. Hang in there.

Hi @frankcat. I was not hospitalized like you (I can't imagine the trauma of that experience!) but I have experienced the 'body not breathing on its own' horror. It's beyond terrifying and debilitating, especially when not hospitalized, with no one to rescue you in the event... I had to manually breathe, if that makes sense. It's as if my body had forgotten how to do it naturally - automatically. I couldn't sleep. It would come and go for about 6 months and I still have bouts with this by much less frequently, thank the Lord! This set in at about 18 months post Covid (original strain - March 2020), 6 months post vaccination (original series - Moderna). To this day there are times when the opposite happens and I can feel my body breathing well on its own - my rib cage rising, the pull from the pelvis all the way up to the chest - and I'm conscious of how it's doing this completely on its own and I relish in how good it feels. Most of the time I need to 'pull' my breath up if that makes any sense?

Hi Frank,
I too have fibromyalgia having been diagnosed a few years ago. I swear to God this all started with Covid. Specifically getting the vaccination 2x and still having Covid. I will NEVER get another Covid vaccination! I don’t know if anyone can find out for sure if this was the cause.

Thank you for sharing your story. You are not the only one. Hang in there. Good days and bad.