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D.E.S. Daughter with an Autoimmune Disorder! Anyone else???
Autoimmune Diseases | Last Active: Sep 1 1:20pm | Replies (14)Comment receiving replies
I am a DES daughter and am so interested to see this thread, I have been suspecting a connection for a long time. I've had a history of medical conditions that none of my 4 siblings have had, including dysplasia of the cervix, endometriosis, loss of an ovary due to a cyst, 3 miscarriages and one live birth. Various other oddities- spontaneous spinal fluid leak, inner ear dysfunction, Dupuytren's, hyperparathyroidism, etc. I have been ANA positive for about 6 years, finally found a rheumatologist that has tested enough to find positive for RA, HLA-b27, early Sjogren's and waiting to determine what the HLA+ might indicate. My daughter had advanced Hashimotos and had her very enlarged thyroid removed which showed microscopic amount of cancer. I am also Rh-, different from my family. I've had high cholesterol for years, despite low body weight. I would love to know if there are any studies or research on this.
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I don't know about any studies but I'm also a DES daughter with multiple autoimmune diseases. Rheumatoid Arthritis at 9 yo. From there Sjogren's, Grave's with removal of thyroid, endometriosis with total hysterectomy, Systemic Vasculitis (Polyarteritis nodosa) Autonomic and peripheral neuropathy (autoimmune). The autonomic has caused gastroparesis and severe orthostatic hypotension. Both daughters have autoimmune diseases but my son is fine. All of these problems sound crazy but with the help of a caring family practice doctor all the dots connected when I was in crisis and didn't realize it. He explained it like a bunch of satellite issues revolving around the real problem. My rheumatologist said it never should have happened because I had the history of rheumatoid as a child. I'm now 66 and life is a daily struggle and I'm tired. I am on Cellcept and monthly IVIG treatments. If you find any good research articles please post them. I'll do the same.