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Dealing with a Spouse with a “Mild Cognitive Impairment”
Caregivers: Dementia | Last Active: 20 hours ago | Replies (405)Comment receiving replies
Thank you for your reply. I live in an area that is fairly remote so finding a group that physically meets would be almost impossible. When I have looked for groups that meet online I only see full blown dementia support groups and don’t know if my situation would apply to the group. My husband is still with it enough to play golf, drive, manage everyday life but needs help with certain tasks. For example he was always capable of putting together furniture and toys and now struggles to follow directions. He was an avid baseball fan and still enjoys watching the games but has a hard time remembering the players and their standings. Life has changed. I am constantly worried he will get scammed and share personal things like social security numbers …. He has done this once and now I have locked his social and hus credit. I take life on a day to day basis.
Replies to "Thank you for your reply. I live in an area that is fairly remote so finding..."
Hello rochrsalley81
Your situation is a mirror of mine for 10 years. This past 4 years i have seen more changes but he is still running his life. I do all technology , research, planning of trips, and so much more. The burdens we carry are all hidden from the world which can leave care takers feeling unseen. I no longer talk openly with most “loose friendships “. Explaining the nuances of dementia is hard for folks to grasp.
My husband forgets conversations but now he hears words i didn’t say. Like “ if you would like to go early thats fine. I can’t be ready for 30 minutes. He gets sulky and then says he’s leaving since i don’t want to go. “ it is exhausting having to explain myself over and over.
I too worry about him contacting business and giving private info to everyone. I’m ready to move to an independent living situation inside a retirement community. If one of us needs more care its there for us. We may not be able to afford it but it would make me feel safer having other folks taking care of our homes upkeep. We would have less to bicker about. 😞
He just turned 70 and im 68. We married 14 years ago and its been a hard journey. I believe I was stuck in grief and doubt for many years. I hope you can prevent that from happening to you. It will only bring bickering into your marriage which is destructive for all.
So sorry for rambling! That happens when we have no one to vent to. 😬
Bye for now,
K
I’m active in an Alzheimer’s organization group for caregivers of those with dementia and had the same concern.
My husband’s diagnosis then was MCI and I thought I’d be an interloper. I explained that the first time I attended and was welcomed by all present. It’s been immensely helpful to have started participating early in the process.
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This is all so very difficult, as you and others have mentioned…but the fear of being scammed is pretty terrifying to me, also!