← Return to STOP! Don't do this if you have osteoporosis

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Profile picture for susanfalcon52 @susanfalcon52

shail,
Do some research before you start drug treatment. This is a complicated disease with complicated treatment options.
Two experts in the field are Dr Lani Simpson and Dr Keith McCormick. They both have books, websites, do consultations, etc.
Sadly, I would also caution
you to not trust your doctor to be educated about osteoporosis unless he/she IS educated about it.
The first doctor that attempted to treat me for osteoporosis was my gynecologist. She was uneducated about it.
Later, I had an endocrinologist who was treating a lot of osteoporosis patients, but who was uneducated about it. I attempted to give him Dr McCormick’s book, but he refused to take it.
Now, I see a rheumatologist who is on top of treatments.
I have been fortunate with treatment. I had. Year of Evenity followed by an infusion of Reclast. I went from osteoporosis to osteopenia. Also, had no side effects.
At 73, I still have to figure out every next step.

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Replies to "shail, Do some research before you start drug treatment. This is a complicated disease with complicated..."

Love the last line! Although retired. It seem like I have a job trying to figure this out step by step. I am thankful for all of the people here who are sharing so much of value. Dont know if I would have the energy or will without you all. Thanks

thankyou susan for taking the time to explain so much in detail about your personal experience. I had no inkling about osteoporosis treatment being so complicated. I will definitely look up both your suggestions. I'm so happy to hear that your osteoporosis has reverted into osteopenia. wishing you further safe treatment and strong bones.
A relative in her 50's chided me for trying to find out more about the treatment. she said that it would only confuse me. she has unquestioningly started teriparatide give for 4 months by her doctor as she has osteopenia T score of 2.5.
Her doctor said he would give another medication after a year. she assumed that once her bone density increases she will require no further treatment. I don't know if that applies for osteopenia treatment.