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Becky, Volunteer Mentor avatar

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Sep 25 11:05am | Replies (407)

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@artmom Welcome to Mayo Clinic Connect! I’m glad you found this site and will stay with us! You mention fatigue — have you seen this discussion about fighting fatigue?
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/ It explains how to use/save your energy throughout the day.
Most of us had a hard time with prednisone and experiencing the disease. Keep doing what you’re doing and ask questions!

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Replies to "@artmom Welcome to Mayo Clinic Connect! I’m glad you found this site and will stay with..."

Hi Becky,
I’m currently at a very interesting stage with my illness. For the past month, I haven’t been taking any steroids at all — only various supplements such as Ashwagandha, Rhodiola Rosea, Omega, Curcumin, Alpha-Lipoic Acid, and actually quite a few others. During this whole time, I’ve been stable, and I can feel my energy gradually coming back.

As the mentor of this group, have you heard of similar cases? I should also add that I built this plan myself, without any doctor’s support, so I can’t recommend the same path to anyone. But it seems to me that if my remission continues longer, my case might actually be very interesting from a scientific perspective.