Evenity worked for me: Why I chose medication for osteoporosis
I just completed a year of Evenity and had my f/u Dexa. My first Dexa was in 2015 when I was in my 50s. My OB/GYN suggested it as I had broken a bone in my 40s. That Dexa showed osteopenia in my lumbar spine with a score of -2.4. At that point, I was adamant that I would not take any medication. I increased my calcium and kept up my running and weightlifting. I also decided that since I wasn’t going to take any meds, I wouldn’t bother with f/u Dexas. I started seeing a new NP who convinced me that I should see what my scores were in 2023. I was shocked to see that my lumbar spine was now-3.4. That was a real wake up call! Severe osteoporosis.
So I was still set on not taking medication, especially after reading a lot of the discussions on this site. I spent most of 2023 running more, lifting heavier, yoga, Algae Cal and Strontium (yes I know Strontium shows false strengthening). I hiked in NC that summer with a heavy backpack. But in the meantime, I read all of the books recommended, researched the medications, and made an apt with the osteoporosis center at our large teaching hospital. My plan was to see if I could improve my results naturally. I would pay for another Dexa out of pocket to see if anything changed.
In Oct I went to see the provider that runs a large osteoporosis clinic. I told her my plan. She was very honest with me. She said I would be wasting my time and money. She felt that my osteoporosis was genetic. I was already doing everything I could including bio identical hormones and my score was worse. She said to stop the Strontium which I did. She said that osteoporosis was a chronic condition. You can improve it with medication but once you stop, you will begin losing bone again and go back down. I would have to be on something for the rest of my life. I elected to start with Evenity. My labs were good and remained good. I had no side effects from the medication. I chose Evenity due to my Medicare coverage. I have Medicare A/B, plus a D plan and a gap plan. Tymlos and Forteo had large monthly deductibles. Evenity was covered at 100% because I went to an infusion center and it was covered under Part B and my gap plan. Also Evenity targets the lumbar spine and that was my biggest problem. Even though I had a lot of hesitation, I decided to trust my provider who follows a large patient population of osteoporosis. I was concerned about side effects but I pulled up the actual clinical trials and read them. The # of severe side effects were actually very low and were almost equal in the placebo and medication group. My provider confirmed that and said that my chances of a severe side effect would be very low but my risk of a fx was very high and that would change my life. She said that the serious side effects were not showing up in the general population of people taking the medication.
My latest Dexa showed improvement in my lumbar spine to -1.8 (from -3.4). I will switch to Prolia next month. I would encourage anyone hesitant to start medication to read as much as you can and discuss with your provider. I also chatted with the infusion center nurses and other patients that I met at the center about Evenity and Prolia to see what their experiences were. Everyone said the same thing, that most patients do very well. Occasionally, someone needs to change their medication but that was rare. Also, I’m pretty healthy. There are some patients with multiple comorbidities and they might have more issues.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
https://pubmed.ncbi.nlm.nih.gov/38311211/#:~:text=When%20indicated%2C%20stopping%20denosumab%20can,care%20across%20the%20postmenopausal%20lifespan.
I was also apprehensive about starting any medication, however I was more scared of a compression fracture that would probably end my active lifestyle. There’s a lot of people that have posted about having fractures and they are very painful. I would suggest talking to your provider about your concerns. Again, I have been on Prolia for almost a year. I feel fine. I spoke to another patient who was next to me at the infusion center and she’s been on it for 8 yrs with no problem. I have to be on something for the rest of my life. It is genetic for me and all of the weight lifting in the world cannot change my genetics.
My osteoporosis journey started 5 years ago after a foot fracture. I had reclast injections 1x per year… SEEMED my #’s were stable. However, I showed up with 2 spinal compression fractures a few months ago. Dr said my #’s didn’t look THAT bad, however, the fractures tell a different story. She said it would have been preferable to have started in Evenity 1st, but Evenity is for more severe cases. So it is possible , the Evenity may not be ‘as effective’ because of that. As I stated in previous posts, I have had 2 of the Evenity injections to date.
As far as the reclast is concerned, I never had reactions.
I have taken calcium and D3 Supps for at least a decade… probably longer. I am very active.. horse back riding, lots of outdoor chores, etc. Sadly, horseback riding is a high risk now…. I’m debating … I don’t ride my horse any more (he’s an old fart) but I do ride with friends / granddaughter occasionally.
thankyou so much for sharing this study. I will discuss this with my doctor.