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Just realized I could've answered both in one and didn't. I so appreciate this additional information and especially the link. HOW you raised children and managed .. I do not know. We have one cat and after the deaths of 2 my husband wanted at least one more. I can barely manage one ... and her needs are NOT that of children!
A friend with ME/CFS has been helpful - she helped me feel comfortable about hearing aids, and doing nothing. It's the latter that's hardest! I'd worked for pay from baby sitting to a weekend job at 14 with only time off for surgeries and NOT working is the toughest. Yet, I have no choice. I can't.
I will read more at the site and continue to bug docs about looking for help - it has to be there eventually.
With gratitude and care,
Joan
Replies to "Just realized I could've answered both in one and didn't. I so appreciate this additional information..."
Joan, so sorry about the EBV mention- Got that confused with another comment. Brain Fog strikes again. 😆
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Joan, I don’t know how I did it either! It was so hard! Completely missed out on their elementary school years- cried a lot. Fortunately my health improved later somewhat for a few years.
I hear you about having pets. We had them when the kids were home but there’s no way I could take care of one now.
You mentioned chronic EBV. My ME/CFS was initially triggered by a nasty EBV infection that attacked my nervous system and years later caused axonal Polyneuropathy. I’m housebound mostly now and have recently needed to use an electric wheelchair when I go out.
These viruses seem to be at the heart of so many neurological diseases. And EBV seems to be particularly a culprit in many of them. I always wondered if Long Covid is a result of activated or reactivated EBV combined with Covid- like a perfect storm for those of us who seem to be genetically predisposed to it.