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brian93 avatar

Airway clearance techniques

MAC & Bronchiectasis | Last Active: Aug 31, 2025 | Replies (50)

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I didn't get kicked off, but she quickly deleted 2 of my posts that said steroids had helped me, once regarding asthma and once for PND. She did send me a warning so maybe has changed since Sue's experience. Imo, clearance and nasal rinses help, but once a person's in a deep hole as I was, they may not be enough. My sinus drainage didn't improve until an ENT specializing in frontal sinuses added a steroid to my sinus rinse. I was already on steroid spray. I'd also been doing NeilMed rinses 2x/day for2-3 months and was still hoarse from all the drainage.
I stopped reading after she advised a woman who sounded pretty sick with elevated fever, productive colored cough, etc. not to take antibiotics patient's doc recommended, but increase airway clearance. I posted a generic sounding note encouraging woman to call doc again or go in if not better rather than saying I thought that could be harmful advice because I didn't want it deleted , too. Imo, that type of specific advice without med training or without knowing/seeing the patient crossed a line for me and I quit reading. I think people here share what worked for them or suggest another opinion and I'm more comfortable with that approach.
I do recognize that she's helped many people learn about airway clearance .

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Replies to "I didn't get kicked off, but she quickly deleted 2 of my posts that said steroids..."

Thank you for sharing your experience, and very sorry that it was such an unsavory one for you. None of us should feel unwelcome and suppressed when discussing a conglomeration of diseases that are for the most part still moving targets for even doctors. There is so little that is rock sure. She may have taken the feedback to heart b/c I haven’t seen her tell people not to take antibiotics. In fact, she assumed recently that I was taking them for MAC, which I am not yet ready to do for a host of reasons. And I see people sharing their experiences with this or that antibiotic, and if she responds at all she will just direct people to her guides about susceptibility testing and awareness of how any treatments/hospital procedures can make you susceptible to other stubborn and hard to quash bacteria.

Yet all of this good to hear from the thoughtful people on this site, which introduced me to so many amazing resources and people through which I was able to learn a great deal of what I know now while my pulmonologist remained asleep at the wheel. Thank you for being one of them.