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MAC & Bronchiectasis | Last Active: Aug 31, 2025 | Replies (50)
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Thank you for sharing your experience, and very sorry that it was such an unsavory one for you. None of us should feel unwelcome and suppressed when discussing a conglomeration of diseases that are for the most part still moving targets for even doctors. There is so little that is rock sure. She may have taken the feedback to heart b/c I haven’t seen her tell people not to take antibiotics. In fact, she assumed recently that I was taking them for MAC, which I am not yet ready to do for a host of reasons. And I see people sharing their experiences with this or that antibiotic, and if she responds at all she will just direct people to her guides about susceptibility testing and awareness of how any treatments/hospital procedures can make you susceptible to other stubborn and hard to quash bacteria.
Yet all of this good to hear from the thoughtful people on this site, which introduced me to so many amazing resources and people through which I was able to learn a great deal of what I know now while my pulmonologist remained asleep at the wheel. Thank you for being one of them.