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I am glad to hear you have had a good experience with Lung Matters, and would love to agree with you BUT no moderator should ban any member without discussion (private is fine) about the reason(s) for their action. This happened on Lung Matters to me and to more than one member of our group, and people I know on other forums.
It is not the mark of researcher or a professional to operate in that manner. When people in our group violate the guidelines of Mayo Connect, they are contacted privately by our Moderators to try to resolve the situation, only being asked to leave as a reluctant last resort.
As a person who spends many hours on this forum and others, conversing, researching and educating, I cannot accept and respect someone who banishes others as if they are the supreme ruler of a kingdom.
Many times my statements are questioned here, and I go back to see that I was wrong, or I was unclear in how I said something. I often ask others to provide citations for their posts so I can read and learn more. Ours is a very complex disease, and we need to look at all points of view.
Replies to "I am glad to hear you have had a good experience with Lung Matters, and would..."
Hi Sue- The key to many things is up front communication and sometimes people fall down with that aspect for various reasons, including ......'just didn't think of it.'
Hopefully she (Lung Matters) has given thought to her need to communicate better with her followers.
This all makes me think of the fact that we can get one opinion from one doctor and another opinion from either a second or even third doctor and they differ from each other.
So, it is truly up to us many times to do all we can to help ourselves with what is best for us. such as all the research you have done for yourself and others.
Glad we can openly discuss this and hope all understand that all postings are done with the purpose of helping one another and sharing thoughts and experiences.
Truth is, I appreciated your input and bringing to my attention that a statement I made in a post was controversial.
Wishing you a wonderful trip this fall.
Barbara
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I am very sorry to hear that this happened to you and others and hope that lessons have been learned. I haven't seen her act this way, since she has always treated me with the utmost respect as I treat her, and I have never observed her having hurtful interactions with anyone online. On the contrary. But I am not behind the scenes nor do I see the whole picture. It is very sad b/c of how vulnerable everyone generally feels with this disease. I hope that these kinds of things don't happen in the future, and again dismayed that it happened to you, Sue, given how conscientious you are.