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Colleen Young, Connect Director avatar

Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: 3 days ago | Replies (558)

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Profile picture for dave56pa @dave56pa

Hiya I’m Dave just starting 7/23 to live with stage IV mets lung to liver, bone (pelvis, hips, clavicles, entire spine) & again right lung. The dr said he cannot cure me but he’ll make sure I won’t die of cancer. Tanx doc. Immediately started radiation. Partially successful due to the location of the nodules in the spine. Next up chemo another joy ride. Those days following treatment are brutal even with all the anti-everything meds they give you. Then there’s the pain. Bone pain is hurtful, really hurtful. Even with morphine patches and oxy there’s a constant feeling of being unwell in my abdomen and back. Cannot stand at the sink to wash dishes much less climb a ladder to clean gutters. I’ve lost weight and continue to do so even with help from a nutritionist. So how do I live with advanced cancer; I guess I’m still angry hurting sad. I’ll get thru this as I did 2 yrs ago when I had sbrt for lung nodules. Self-pity isn’t helping

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Replies to "Hiya I’m Dave just starting 7/23 to live with stage IV mets lung to liver, bone..."

I’m newish in the cancer experience (18 months) and now have my first recurrence. It’s still not clear exactly what the next step will be but for sure I’ll be having chemotherapy that will be harder on the body than the first round. I feel like it’s important to allow myself scared, sad and angry feelings but I don’t want to live in them all the time. I think self-compassion is necessary and very different from self-pity. I’ve always been a planner and right now I can’t really plan much. It does feel like I’m grieving for the life I had envisioned. I hope to learn and grow from this experience but I’m not there yet!