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DiscussionAny Lyme disease sufferers out there?
Autoimmune Diseases | Last Active: Jun 17 11:15am | Replies (29)Comment receiving replies
Replies to "@car0 Thank you for this information! I just read a book, titled “Chronic” by Steven Phillip,..."
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@becsbuddy Dr. Phillips was the first clinician who treated my Lyme (and co-infections) after my PCP hid my confirmatory Western Blots from me in an effort to convince me I did not have Lyme--which, by the time I discovered his deception, had raged past the point of control. I contracted it in 2002, lost my beloved job as a college professor in 2006, retired involuntarily on disability and have dealt with a cascade of perhaps consequent medical problems since: multiple endocrine neoplasia with acomegaly, Sjogren's, brain tumor, deconstructing spine, etc.
How much worse would it be if Dr. Phillips not prescribed IV antibiotics? I would be dead. I was lucky to have access to a Lyme literate physician. The endocrinologist who diagnosed my acromegaly had trained Dr. Phillips at Yale and referred to him as a "crank." That's how bad it is out there for Lyme--patients and doctors. I respected both of them, but the medical world is not big enough for Lyme disease.
Year after year I hold on. I wish I could do more for others suffering this horror. This dual horror--the disease AND its exclusion from understanding by medical gatekeepers.