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← Return to UCSF Gynecology Oncology Symposium September 27, 2025
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UCSF Gynecology Oncology Symposium September 27, 2025
Gynecologic Cancers | Last Active: Aug 30, 2025 | Replies (6)Comment receiving replies
I find it extremely odd that not one word was spoken about "long term" effects from radiation when gaving it. Also, absolutely nothing was said about needing to use a "dialtor" for up to 5 yrs due to scar tissue build up. Unreal, when as soon after my last bach treatment I was given "the talk" about having to use that. ...and I was hesitant about getting internal radiation, so I "special talk" with doctor about it, throughly, I thought. Ot one mentioned of any long term effects from ANY of the Radiation treatment processes. I have a funny feeling I'm not alone. Its being hidden out there, all the risks. Im gonna go to this and see what else I should know, yet not one word told pretreatment, so one can make informed choice. Very upsetting
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tdfaze,
Unfortunately, I have found that my oncologist has been very remiss in not reviewing potential side effects with me of chemo treatment. I guess I was supposed to know enough to ask. He really did not give much advice on dealing with the expected Neuropathy either during or after chemo ends. As far as radiation goes, I wonder if they feel there is no alternative treatment so the choice is treatment or a shorter life span. I have come to the conclusion that you have to do your own research. I refused Keytruda maintenance immunotherapy as my tumor lacks the genetic markers on which it has proven to be effective. At some point quality of life becomes very important.