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Daily Migraines - How do we function?

Headache & Migraine | Last Active: Sep 2 8:25pm | Replies (31)

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I mean no disrespect to anyone. I see take a walk, get some exercise… if bad, I’m holding the wall to keep from falling in my hallway. Constantly bumping into things. If ibubrofen helped I’d be doing cartwheels! The nausea isn’t as bad as it was. Right now is the best time I’ve had in a while . That’s 1 or 2… (maybe 3 a day).. but not nearly as severe as usual ( no knives thru my head). I actually left the house twice! I use an ice bag not the head cap thing. I know the pain, the fear the terror. But…I just did my emgality shot a few days ago. I have no idea if it’s that. Topirimate too. Triptans nothing. Prednisone wreaked havoc on me and I will never take it again. I see it helps so many people. Never had sinus issues. Did have nerve tips seared. 5 rounds Botox. I’m 67. Worried about stroke? Kind of. More wore worried about spending the rest of my life like this. I’d do or take anything, don’t care where it came from, to have quality time with my adult kids, my wife, travel across the country and actually enjoy my daughter’s wedding. Give me that and I won’t be hanging around with a stroke.
Cathy, Im sorry. I hope with all my heart nothing but the best for you. The things that help me are distraction. I paint. I play guitar. I read if my eyes let me. Listen to music if my head lets me…. And yes, I even watch tv
🙄 if nothing else. I try to look at life differently (😂you can see from my happy post) but I truly do… it’s just hard when you keep slippin back… and when I’m not not whining I’m actually trying to learn how good I got it
5 yrs ago…

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Replies to "I mean no disrespect to anyone. I see take a walk, get some exercise… if bad,..."

I had an ablation procedure about 8 years ago on left side of neck that involved cauterizing the nerve in my neck. After over 45 years of almost daily migraines they were finally totally gone! I rarely even get a mild headache anymore. A friend had the same procedure done by a different doctor but it had no effect. Her migraines continue. I had the migraines caused by a horse riding accident at age 11. Perhaps the ablation only works on certain types of causes? Best wishes for you!
I did have a stroke last year (9/2024) but managed to survive it to the surprise of the hospital neurologist. It was a Basilar artery stroke 100% occlusion (Google it). Less than 15% survive. It was caused from irregular heartbeats from a head injury 10 years prior which has caused tiny clots to travel to my brain. Recovering hasn't been easy. My balance is bad but I refuse to use a cane. 8 months of symptoms leading up to the big one probably caused my brain to set up auxiliary routes of circulation that kicked in. Not having migraines made it far more tolerable. It was quite fascinating to study up on it using UTube videos.
My son lives in the east bay too. Fremont. Nice and cool place to live.