← Return to Inflammatory bowel disease (IBD) support group: Let’s connect

Discussion
Comment receiving replies
Profile picture for kayabbott @kayabbott

Critical to IBDs and IBSs is managing stress; I try to do that by meditating, exercising, hobbies, getting enough sleep/naps, occasionally screaming into pillows, and finding fun things to look forward to. Also critical is avoiding all NSAIDs (aspirin, etc) and checking to make sure you are not sensitive to meds or foods. Keeping a food journal is recommended. I was diagnosed with collagenous colitis (cc) 8 years ago (celiac for 16 years). The initial comment on this string has microscopic, collagenous, and lymphocytic as separate autoimmune IBDs, they are not. Microscopic colitis is named such because it is only diagnosed through microscopic examination of biopsy samples; earlier stage evidences as lymphocytic while the later collagenous stage has a thickened layer of collagen that slows absorption of water. When I get a flare my colon turns into a water balloon and I have several minutes to find a bathroom. My cc was under control for 7 years, until I got covid followed 8 mo later by (evil) norovirus. The norovirus damaged my kidneys and caused cc flares, so now I use the usual controls but also am on a maintenance dose of 3 mg Budesonide/day; it is a designer corticosteroid that has minimal side effects and mostly calms down the colon.

Jump to this post


Replies to "Critical to IBDs and IBSs is managing stress; I try to do that by meditating, exercising,..."

@kayabbott what do you recommend for someone starting a food journal? I’m currently on a 4-6 week miralax cleanse per my dr guidance, and food diary will be next course of action.

I’ve tried previously with fodmapping or otherwise tracking but I get overwhelmed and think I’m tracking too much or not enough