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@bob48

Diagnosed with PMR in May 2020 after suffering for several months with occasional courses of prednisone. Had 13 blood tests to diagnose the cause for everything from Lyme's to lupus to Dengue Fever. Finally sent to a rheumatologist who concluded it was PMR.

I was started on 10MG of prednisone in May which has been slowly reduced to 6MG presently and ultimately 5 MG in mid October. At about the 7 MG dosage, I started feeling some pain, but not distracting. However, I am Type II diabetic and also have hypertension. Both my Blood glucose and blood pressure had gone out of control and after adjusting those medications, it seems BP and BG are now normal after some scary symptoms.

I joined this discussion group after reading this can be a long term condition. I was expecting maybe one year of treatment and then PMR would go away, but the stories shared indicate it can last years and return. I am 72 and led a very active lifestyle. Since PMR, I have to force myself to get things done.

Are there any alternatives to prednisone that work without the side effects? I have read that CBD oil helps, but cannot find any research that backs up the claims. I live in Colorado where CBD oil and cannabis are legal, but am skeptical about effectiveness. I p!an to discuss with my rheumatologist and wanted some feedback before that happens in November.

I wish you all the very best, Bob

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Replies to "Diagnosed with PMR in May 2020 after suffering for several months with occasional courses of prednisone...."

Hello @bob48, Welcome to Mayo Clinic Connect. I've had 2 occurrences of PMR and it is currently in remission. I have no medical background or training but I am pretty sure that the prednisone controls the cause of the muscle and joint pain which is inflammation. What has helped me more than anything is staying active as much as possible while not overdoing it and changing my eating habits. I also take a few supplements which I believe help keep the PMR in check as I don't think you ever get rid of it, it just goes into remission.

You might find the following articles helpful:

– Diet and Supplements for Polymyalgia Rheumatica (PMR): https://www.arthritis-health.com/blog/diet-and-supplements-polymyalgia-rheumatica-pmr
– Polymyalgia rheumatica diet: Foods to eat and avoid: https://www.medicalnewstoday.com/articles/321683
– 3 Strategies for Coping with Polymyalgia Rheumatica (PMR): https://www.arthritis-health.com/blog/3-strategies-coping-polymyalgia-rheumatica-pmr

I have no experience with CBD oil or medical cannabis since I was able to taper off of prednisone and my PMR went into remission. @artscaping may have some information to share with you on it's use for relieving pain. Here's a study I found that has some information that might help you.

– Medical Cannabis Use by Rheumatology Patients Following Recreational Legalization: A Prospective Observational Study of 1000 Patients in Canada: https://onlinelibrary.wiley.com/doi/full/10.1002/acr2.11138

After you meet with your rheumatologist and make a decision can you come back and give use an update?