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First Pluvicto Infusion Soon

Posted by lee1447 @lee1447, Sep 16, 2024

My husband will be getting his first Pluvicto infusion in October. I am trying to obtain as much information as possible so I am able to help him along this long journey.

I appreciate reading the comments about the radiation exposure. Needless to say my anxiety level is at the top of the scale. My main concern right now, though, is how to carry on with our lives between the fusions, knowing that thebimmunity system will be low because of the treatment. The pandemic forced me into more self isolation than I needed and I want to have us live our life between infusions rather than to take extreme precautions because of the low immunity. So, I am interested in hearing how you handle those weeks. I know everyone’s experience is different, but if he feels well and lab tests are ok, what kind of “normalcy” can we expect? What do you do between infusion appointments “

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ajpernsteiner | @ajpernsteiner | Aug 28 9:31am

Husband just had his 2nd infusion. Almost zero side effects, slightly more fatigue on day 4. He uses his own bathroom and bedroom for 1 week. All clothing worn for the first week kept in a laundry bag for 2 weeks. Then I double wash them. He is very active, maintains 6 properties doing yard and pool care. I insist he take a 1 hour nap daily. We have 2 grand daughters that we care for almost daily. The first 3 days following treatment no contact, then stay a minimum of 6-8 feet apart for 8 days. He returns to the gym, Church after 1 week. The first shot he noticed some slight nausea, we arranged vitamin B12 shots, he gets 1 weekly, it has solved that situation. So far it has been almost sympton free, will get blood work soon to see if PSA is down.

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asolidrock | @asolidrock | Aug 28 5:45pm
In reply to @redroadtraveler "I have just finished receiving all 6 Pluvicto treatments. I am the Pluvicto Poster Boy in..." + (show)
Profile picture for redroadtraveler @redroadtraveler

I have just finished receiving all 6 Pluvicto treatments. I am the Pluvicto Poster Boy in that I have handled these treatments the best of all patients treated by my oncology center.

I would advise you to purchase a dosimeter (about $100 on Amazon) to monitor the daily changes in radiation levels. I would rather know what's going on and be proactive than just trust and blindly follow the advice of the oncologist. I took daily readings at arms length and on my body. My personal experience and take on it is the official guidelines of staying three feet away for three days, etc. are not enough, at least not enough for me who is very concerned about "collateral damage" to loved ones and caregivers.

Based on my personal radiation readings, done every day, I isolated myself completely for the first week after treatment, then allowed myself to be in the same room with others and brief personal contact (a hug, a handshake) but no pronged contact (no sleeping together). After two weeks the radiation half life did it's thing and was negligible. So for the next four weeks it was "normal life".

I didn't feel too bad during the treatment. The usual lack of strength and stamina. My most serious side effect was constipation.

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I am talking docetaxel infusions. Met with my oncologist before my infusion and I did ask him about pluvito. He agreed that pluvicto was good, although he thinks what im doing will work and if he will try pluvicto.

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