I’d like to meet others with ulcerative colitis

Posted by jkstanley @jkstanley, Mar 16, 2013

I have Ulcerative colitis and wondered if anyone here has it and have had experiences of thinking that you can get cancer with this. I am really scared but otherwise I feel fine today.

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

Lisa Lucier, Moderator | @lisalucier | Aug 19 11:05pm

In reply to @ksnak "I was recently diagnosed with ulcerative colitis. I also have rheumatoid arthritis and thyroid disease. Honestly..." + (show)

Hi, @ksnak - how did the doctor come to find you had ulcerative colitis? How did you feel about that diagnosis?

ksnak | @ksnak | Aug 20 2:52pm

In reply to @lisalucier "Hi, @ksnak - how did the doctor come to find you had ulcerative colitis? How did..." + (show)

Lisa I had a colonoscopy and there was a lot of mucus and visible areas in the colon. They took biopsies from the left sigmoid, right sigmoid and cecum. I have an appointment to meet with him next month so will find out more.

cardigan | @cardigan | Aug 28 3:05pm

I have diverticulitis and also ulcerative colitis.I am wondering what people take for the discomfort.My gastroenterologist has not given me anything for either condition.

cardigan | @cardigan | Aug 28 3:07pm

Anybody out there suffering from Diverticulitis?

Lisa Lucier, Moderator | @lisalucier | Aug 28 3:57pm

In reply to @cardigan "Anybody out there suffering from Diverticulitis?" + (show)

Hi, @cardigan - welcome to Mayo Clinic Connect. Having both ulcerative colitis and diverticulitis is quite a lot to deal with.

If you'd like to read through and participate in a discussion on diverticulitis, you might check out this discussion on Connect:

- Diverticulitis https://connect.mayoclinic.org/discussion/diverticulitis-2adead/

Though the discussion was originally started in 2016, posts have continued to be added to it, even this week.

When were you diagnosed with ulcerative colitis? What symptoms give you the most trouble?

cardigan | @cardigan | Aug 28 4:34pm

In reply to @lisalucier "Hi, @cardigan - welcome to Mayo Clinic Connect. Having both ulcerative colitis and diverticulitis is quite..." + (show)

I was diagnosed with the cholitis approx 5 years ago.My condition may be caused by diverticulitis as I have near constant left sided pain.

cardigan | @cardigan | Aug 28 4:37pm

I have been advised by my gastro.that the mucous in my stomach is very scarce.He did a biopsy and I am awaiting the results.

Lisa Lucier, Moderator | @lisalucier | Aug 29 9:34am

In reply to @cardigan "I have been advised by my gastro.that the mucous in my stomach is very scarce.He did..." + (show)

@cardigan - what were your doctor's potential concerns related to the scarce mucus in your stomach?

When will your biopsy results be available?

cardigan | @cardigan | Aug 29 2:05pm

In reply to @lisalucier "@cardigan - what were your doctor's potential concerns related to the scarce mucus in your stomach?..." + (show)

He is awaiting results of biopsy and then he will write to me with hopefully a prescription for my inflamed stomach.He actually called to my bed too soon after I having the gastroscopy and I was not fully awake so could not take in what he said.He came around much too soon but that is what they do sometimes.I got a written report on leaving the endoscopy room which informed me that my stomack was fairly bald.

cardigan | @cardigan | Sep 1 6:02pm

I do not know really as I was just out of the endoscopy theatre and was not fully awake when he visited but on reading up on it I think it can turn ulcerous and the inflamation can be uncomfortable. That is why I'd like to compare with somebody who has the same problem.