When I was diagnosed, I had had diarrhea for about a year. Weight started at 186 down to 143. The GI said it was very rare, treated with Budesonide and he said it could come back, but he didn’t think it would. I finished my Budesonide and immediately started with the watery diarrhea again. Put me back on Budesonide for a month. This time I was fine for about 4 months. Then it came back again. It’s been following that 3-4 month break and flare. I also have gastroparesis. This complicates things. One says I need fiber, the other recommends low fiber. Have an appointment tomorrow and we will see what happens.