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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
It is such a comfort to hear everyones stories. It is what truly makes me feel not alone in this. Not many people really understand what we go through, and how the pain affects our emotional well being . I started 20 mg prednisone 2 years ago . It has been an up and down battle to get as low as 4mg. Then the pain came back full force. I went up to 10mg for 4 days to try and reset. Im now at 7mg because I was in too much pain going back to 4. A person has to be so strategic! There are no rules to follow, so you have to listen to your body and try to adjust medications to bring yourself to a good quality of life. I still have pain, in my shoulders and hips, but use Tylonal when it is bad. Good luck everyone! our experiences with PMR can be so different from eachother, that the more stories we read, the more often we find one that is just like our own, and it is comforting.
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@sallygosse
Hi everyone, I am a bit late into this discussion but thought I would add my story as it may help someone. It took me nearly two years to get off prednisone and my tapering was back and forth a bit but patience is the name of the game with this and like most of you I just wanted to get off prednisone as soon as posssible due to the side affects. My original dosage was 20mg which I stayed on for 2 months, then dropped to 15mg for 2 months and then down to 10mg. Once I got to 10mg I dropped 1mg per month, at first I had more aching but put up with it for a least a week to see if it would settle and it normally did to a point where I could cope with it, I kept up reducing the 1mg per month still testing if the pain would reduce after a week, if it didnt I would go back up 1mg and then try again. This worked until I got to the 1mg, this was the hardest to get off and I felt quite bad with not the PMR but I think the affects of coming off the prednisone. After a while I realised I could not just drop the 1mg, so I reduced like this, 1mg for two weeks, 1mg every four days for a two weeks,1mg every 3 days for two weeks and so on until I reduced it down to 1mg once a week, then I tried just stopping and it worked. I still have stiffness but I treat that with a CBD balm and CBD oil drops if it is too bad. This works for me and life is better not being on the prednisone. I realise that not all people are the same but this is my story and I hope it helps someone. Good luck to all that are trying to get off this drug. Love and light to you all.