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@heretaunga1947

You are definitely not alone. I must admit I was complacent and happy to live in relative comfort at first with about 10 mg but then the Covid and with the affect of the prednisone on the immune system, and at same time finding out I had shot up into the pre diabetic state made me make a big effort and like you say, just keeping on working through now. Our local pool is opening up again so I am going back as I found aqua jogging is very good in getting those thigh muscles working, doing things I can't normally do. Hope things start to go better for you.

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Replies to "You are definitely not alone. I must admit I was complacent and happy to live in..."

It is such a comfort to hear everyones stories. It is what truly makes me feel not alone in this. Not many people really understand what we go through, and how the pain affects our emotional well being . I started 20 mg prednisone 2 years ago . It has been an up and down battle to get as low as 4mg. Then the pain came back full force. I went up to 10mg for 4 days to try and reset. Im now at 7mg because I was in too much pain going back to 4. A person has to be so strategic! There are no rules to follow, so you have to listen to your body and try to adjust medications to bring yourself to a good quality of life. I still have pain, in my shoulders and hips, but use Tylonal when it is bad. Good luck everyone! our experiences with PMR can be so different from eachother, that the more stories we read, the more often we find one that is just like our own, and it is comforting.

Thank you, Keep up the good work.