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@ncgal

I was finally diagnosed with PMR on April 1st of this year after being passed to 5 different doctors. First my oncologist, then he passed me to my GP who passed me to the radiologist then to the neurologist (who actually diagnosed PMR) who sent me to the rheumatologist. I started symptoms of PMR at the end of January. Each doctor did blood work but no one picked up on the very high C Reactive Protein count. I had just finished my breast cancer treatments in December and have neuropathy from the chemo treatments so think the doctors were more focused on that than anything else. Anyway, I have been put on Prednisone 10 mgs and was given a butt shot (not sure for what, maybe cortisone) at the first visit. The symptoms went away immediately from not being ab le to get out of bed without a lot of pain in arms, shoulders, legs, hips, etc. to being completely pain free. I was advised to drop a mg every two weeks so am now down to 7 mgs in a few days. So far so good. I was overweight and have lost 60 lbs since chemo which is a little too much, but since Prednisone have now started to gain a little more. I really appreciate this board as I'm learning things that were not mentioned by the doctor. I'm eating right, sleeping well, but have a hard time doing a lot of exercising as I get so fatigued so fast. Does fatigue go along with the Prednisone?

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Replies to "I was finally diagnosed with PMR on April 1st of this year after being passed to..."

Hi there ncgal. When I was diagnosed last summer I was started on 15 mg of prednisone and felt like superwoman. I actually felt very good (other than weight gain) until I got below 10 mgs. and then I started experiencing some pain and fatigue. At 7 mgs. I hit a pain wall and had to go back up to 8. Right now I take 7.5 one day and 7 the next trying to continue to wean slowly. Fatigue and some pain seem to be part of the tapering process.

Whar is PMR pain?

Fatigue is one of the components of PMR. I have been dealing with PMR for over three years. I am one of the unfortunates who has not gone into remission. I am currently taking 7.5 mgs of prednisone daily and am titrating at .5 mg per month. I am still hoping for remission.