Not sure how this works, but I have posted similar info before. Also, please forgive me for such a lengthy post, but I longed with all my being to find out what was happening to me and thought this may help some .
My Name is Matt, At 65 I was going through a situation with that caused a lot of stress. I have a back issue with my 4th vertebrae shifted forward and have dealt with back issues about 5-6 times over my life. I was having issues with my back again of course I thought the vertebrae's and the nerves contributed to this problem. I am also a very healthy Male and do yoga,Weight lift and lots of walking or biking. While i was going through the stress and back issues,I woke up one morning and shared with my wife I could barely get out of bed. Not sure what was going on ,I proceeded for several months with Chiropractors, acupuncture, Icing, over the counter pain pills ..........It was the most painful experience I have ever felt and over this time it had progressed from my hips, to my shoulders, sits bones, not my wrists. It felt like a nail was driven into each of those areas. Finally after months I went to a DR. that had helped me with my back 2 times previously. Really he did nothing before, except to say rest and take pain pills and always mentioned the back condition I had. This time he suggested a cortisone shot, which I had and it lasted about a week.Of course after a follow up visit, and all the pain had returned he suggested back surgery. He said it was very marginal ,but maybe that would help and something was going on that we didn't see..I declined ,because I had always reversed the back pain with manipulation (Chiropractors), Core exercises, bike riding (Cardio) and yoga and of course eating well and keeping my weight down. I knew something was different about this time.
I remember if I ever had to sit very long, I would stiffen up terribly. My entire body was hurting with a deep concentration of pain in the shoulders and hips and sits bone.
When My wife and I went to Mexico. It was at it's worst and as I napped for 3 hours during the day, which wasn't unusual, she got on the internet and looked up "Aches and pains of men over 60",. PMR showed up. As she was reading she got so excited ,because it sounded exactly like the symptoms I had. When I woke up she started to read it to me. I agreed, It was exactly what I felt like. I am a painter and my painting friend was a heart Dr. at the Mayo Clinic. He had seen me the day before and went onto the Mayo Clinic web site for information. That morning he ran through our door, saying,""Matt ,Matt, I know what you have, you have PMR."He said , "we can do a simple test to see if you have PMR by giving you some prednisone" Being in Mexico, we went down bought some, and I took it immediately. I forget the exact dose, but I believe it was 20-30 mg.. Within an hour I could feel it going through my body releasing the pain joint after joint until the pain was completely gone. Please remember It has been about 1 year, I had been dealing with this.The next day I was on the our roof. The pain was gone. From Mexico I called a DR. I knew, who recommended a Rhumitologist in Vancouver,Washington. I had to go off the prednisone to be tested, I believe it was for 2-3 weeks and of course the PMR came back with vengeance . After seeing the DR my blood work did not correspond with my diagnosis of PMR. She didn't think I had it, but she said let's treat it like it is PMR. I also over the months ahead found more than 11 different people with PMR and found that most women's blood work showed the symptoms and almost all the guys blood work did not. Again I started on Prednisone and the relief came immediately ,with first dose of 20 mg. Over the next few months (6???) I started the reduction program. At first I was fine until about 8 and which time I was told to go down in increments of 1mg. The only problem was the PMR pain always came back and stayed and I knew as all of us that have had this, I could not or did not want to deal with this horrific pain. I started a reduction plan of 1/4 of mg. The pain would return, but it would also leave after 2-4 maybe sometimes a little more, but I knew it wasn't going to last as long as the 1 mg. Finally I hit 1/4 mg and told my body this is the last you are getting. I have been free of any symptoms and I am 69 now.
In concluding this, this is what worked for me. The things I continued to do through this ordeal were, Reduce my stress through prayer and meditation(live in the present), Exercise and stretch, Eat well, sleep well, take those naps, Bike and try to get your body to produce it's natural chemicals through strenuous and aerobic exercise.(Biking is easy on the joints) Not excessive!, Slow life down, rest, drink lots of water, do things that bring you happiness, and that could mean, think outside yourself which I found hard when in the thick of the pain, be thankful for each person on this post, for them sharing their story and journey. Lastly ,each of us will go through this differently so what we do must be adapted to each individual
Blessings Matt
This will be my last post, but please share with others .

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