This thread doesn't mention Keith McCormick's latest book which is 700 pages but a great resource used by many of us. "Great Bones."
I happen to know, from a masterclass I took with her, that Lani Simpson has been on medications, (she was starting Tymlos at that time, 2021) so that book may not include that info. Keith McCormick also used medications at one time (Forteo and Fosamax).
Hi @rete. Would abaloparatide (Tymlos) be your first foray into medication for osteoporosis? Could you share what concerns you about it? If you have results from DEXA, TBS and bone markers that you're comfortable sharing, that would be helpful for this community to know so we can best guide you if you'd like. If you have a history of fractures or prohibitive comorbidities, that would also be helpful to know.
I completed one year of Tymlos with minimal side effects - some joint pain and fatigue. I also have an autoimmune disorder that contributed to the side effects I experienced. Overall, I think that Tymlos is pretty well-tolerated by the majority. The injections were very easy and completely pain-free for me. For reference, I completed one year of Evenity before Tymlos, and am now on Reclast. Your doctor should be able to tell you what your next step would be after Tymlos (or any other medication).
Best wishes to you moving forward!
Hi @rete. Would abaloparatide (Tymlos) be your first foray into medication for osteoporosis? Could you share what concerns you about it? If you have results from DEXA, TBS and bone markers that you're comfortable sharing, that would be helpful for this community to know so we can best guide you if you'd like. If you have a history of fractures or prohibitive comorbidities, that would also be helpful to know.
I completed one year of Tymlos with minimal side effects - some joint pain and fatigue. I also have an autoimmune disorder that contributed to the side effects I experienced. Overall, I think that Tymlos is pretty well-tolerated by the majority. The injections were very easy and completely pain-free for me. For reference, I completed one year of Evenity before Tymlos, and am now on Reclast. Your doctor should be able to tell you what your next step would be after Tymlos (or any other medication).
Best wishes to you moving forward!
Hi @dvargo. This is according to the current prevailing standard of care. At present, Tymlos is only approved for two years total over the patient's lifetime. Many of the medications for osteoporosis are scheduled in sequences. It's a complex system worth researching if you want to take a deeper dive. Hope that answers your question.
Hi @dvargo. This is according to the current prevailing standard of care. At present, Tymlos is only approved for two years total over the patient's lifetime. Many of the medications for osteoporosis are scheduled in sequences. It's a complex system worth researching if you want to take a deeper dive. Hope that answers your question.
Yes, I just listened to a podcast. The reason you can only stay on these drugs for 1-2 years is because the test studies only went that far. So they have to take you off and put you on a new one with the time studied.
Please know that tymlos does most of its bone building in the first year. Also tymlos stimulates both bone building and bone resportion; after a year the resportion activity increases and can in some people halt or stunt the bone building activity. In my case tymlos actually reduced cortical thickness and had negative effects on my feet bones ( mostly cortical bone) to inhibit ambulation.
I had significant gains in spine ( mostly trabecular bone ) but it was my feet that were my weak point. I would have been better off stopping tymlos at 18 months or being on Evenity which has a better abiltiy to help cortical bone. Each person is very differenet with unquie vulnerabilities. You must do the work to rebalance your system, find the right diet and supplementation and then evaulate your best medicinal option. There is no one size fits all here. Osteo is a systemic disease effected by every aspect of system from GI, to inflammation, to genetics, to blood labs, protein intake, mental approach, even to how your breath..... ( overbreathing is acidic ) ... SO my best to you and you will find your wAY
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Hello,
A friend turned me onto this book which I am finding well worth reading.
Dr. Lani’s No-Nonsense Bone Health Guide
Lani Simpson, DC, CCD
Check it out!
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3 ReactionsThis thread doesn't mention Keith McCormick's latest book which is 700 pages but a great resource used by many of us. "Great Bones."
I happen to know, from a masterclass I took with her, that Lani Simpson has been on medications, (she was starting Tymlos at that time, 2021) so that book may not include that info. Keith McCormick also used medications at one time (Forteo and Fosamax).
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7 ReactionsAny info on Abaloparatide? A Doctor has suggested it for me but it sounds awful.
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2 ReactionsWelcome @rete, Here's some information from Mayo Clinic on Abaloparatide (Tymlos) - https://www.mayoclinic.org/drugs-supplements/abaloparatide-subcutaneous-route/description/drg-20406221.
There is a wealth of shared member experience on Tymlos. Here's a search of Connect listing 284 discussions that you might find helpful if you want to scan through the list - https://connect.mayoclinic.org/search/discussions/?search=Tymlos/
What scares you the most about the medication?
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2 ReactionsHi @rete. Would abaloparatide (Tymlos) be your first foray into medication for osteoporosis? Could you share what concerns you about it? If you have results from DEXA, TBS and bone markers that you're comfortable sharing, that would be helpful for this community to know so we can best guide you if you'd like. If you have a history of fractures or prohibitive comorbidities, that would also be helpful to know.
I completed one year of Tymlos with minimal side effects - some joint pain and fatigue. I also have an autoimmune disorder that contributed to the side effects I experienced. Overall, I think that Tymlos is pretty well-tolerated by the majority. The injections were very easy and completely pain-free for me. For reference, I completed one year of Evenity before Tymlos, and am now on Reclast. Your doctor should be able to tell you what your next step would be after Tymlos (or any other medication).
Best wishes to you moving forward!
I am wondering why they keep changing your drugs if Tymlos worked for you?
Hi @dvargo. This is according to the current prevailing standard of care. At present, Tymlos is only approved for two years total over the patient's lifetime. Many of the medications for osteoporosis are scheduled in sequences. It's a complex system worth researching if you want to take a deeper dive. Hope that answers your question.
-
Like -
Helpful -
Hug
2 ReactionsYes, I just listened to a podcast. The reason you can only stay on these drugs for 1-2 years is because the test studies only went that far. So they have to take you off and put you on a new one with the time studied.
-
Like -
Helpful -
Hug
1 ReactionPlease know that tymlos does most of its bone building in the first year. Also tymlos stimulates both bone building and bone resportion; after a year the resportion activity increases and can in some people halt or stunt the bone building activity. In my case tymlos actually reduced cortical thickness and had negative effects on my feet bones ( mostly cortical bone) to inhibit ambulation.
I had significant gains in spine ( mostly trabecular bone ) but it was my feet that were my weak point. I would have been better off stopping tymlos at 18 months or being on Evenity which has a better abiltiy to help cortical bone. Each person is very differenet with unquie vulnerabilities. You must do the work to rebalance your system, find the right diet and supplementation and then evaulate your best medicinal option. There is no one size fits all here. Osteo is a systemic disease effected by every aspect of system from GI, to inflammation, to genetics, to blood labs, protein intake, mental approach, even to how your breath..... ( overbreathing is acidic ) ... SO my best to you and you will find your wAY
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Like -
Helpful -
Hug
3 ReactionsWhich of the POSSIBLE side effects troubles you most?