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@lindapc

Hi@suemck, I was diagnosed in July 2018 and have been trying to taper down for the last 6 months from 5mg prednisone, it has gone in swings and roundabouts, the method I have used is reducing by 1mg per month once I was down to 10mg, I have got to the 1mg and found it really difficult to just stop as I get a flare up, so what I tried was reducing by days, I took 1mg every day for 2 weeks, then 1mg every alternate day for two weeks and I am now up to 1mg every 4 days. I cannot say I am pain free but it is bearable and subsides over days. I had my CPR level and it is down to 3 so hopefully in a few weeks all going well I can stop completely. I also have had strange pain reducing the prednisone, my knees are very sore and my feet ache, feeling of sharp tingling and heat in my legs, plus my body aches like the flu but not all the time. Think this may be related to my thyroid problem. I wish you every success in getting off the prednisone, but you also have to listen to your body and reduce when you feel the best, its no fun being in bad pain, my original plan was to be off prednisone in a year, but realise now that you also have to be sensible I have found this site a great place to get support and information as there is so little known about PMR and have had very little help or understanding from people around me apart from pills from my Doctor, so being able to talk to like minded people is a god send. Best wishes for a speedy recovery Linda.

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Replies to "Hi@suemck, I was diagnosed in July 2018 and have been trying to taper down for the..."

Dear Linda, Thank you for your response and I am so happy for you that you can take only 1mg every four days! I am so jealous! I also feel like my body has the flu without a fever, all the aches and pains everywhere. Was wondering if you have a regular exercise program that you do? I feel like I have such a long way to go before I can get to 1mg, but like you say you do have to listen to your bdoy and reduce accordingly. I hope you can stop completely in a couple of weeks. Thank you again for your response and all the information.