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BCG maintenance or periodic cystoscopy?

Bladder Cancer | Last Active: Sep 16 5:32pm | Replies (21)

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Hi, y’all will probably hate what I gotta say about cysto. They gave me a uti every time which b-lined it straight for my kidneys(already at stage 3b kidney failure) and cannot, no, Will not allow for that to happen AGAIN!! I’ve locked horns with my urologist and told him there would be no cysto without a script for antibiotics, preferably cipro. I went to Cleveland clinic for a few reasons but the biggest reason was for validation of my stance on this matter and got it- she couldn’t believe that any urologist would have a problem with that til I introduced her to my urologist vicariously thru clinical notes on my chart. So, she gave him a little kick in the butt, but I’ll only do 1 a year and that is reluctantly. But in what way does this help you? So well then do you still get some kind of periodic abdominal scans? Ultrasound, anything besides the cysto because I know it’s SOP but I noticed that they seem to take their sweet time setting up an OR to cut the tumor out, so is the cysto all that necessary if, and that’s if you are getting any other type of scan which will catch anything irregular in your bladder, but hey, that’s just me! I hope that you’ll get that resolved one way or another. To your health!

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