Prostate Surgery With Bilateral Lymph node dissection

Posted by soli @soli, 2 days ago

Since I was recently dagnosed with prostate cancer (Gleason 3+7, PSA: 14.5, and GPS score of 47), my urologist is planning a surgery next week which will involve bilateral lymph node dissection to determine the spread of the cancer. I am very worried about the potential added surgical complications associsted with the lymph node dissection and also about lingering side effects.

Has anyone who has experienced this lymph node dissection or know about it give me ideas of what to expect?

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Profile picture for keywest19 @keywest19

I believe they punched my biopsy 3+4 numbers into a nomogram and used the result to decide if lymph nodes should be removed. I was very confident in my doctor and trusted his judgement. I didn't really ask but believe node removal, for my case, was mostly diagnostic for staging. Thankfully, all 13 were negative. I had confirmed cancer in my prostate and it looked contained from the MRI images. Didn't have a PSMA pet scan. I did do a Prolaris test it indicated that I was on the borderline for treat or active surviellance. Looks like the biopsy missed the bad stuff because
my surgical pathology gleason grade was upgraded to 4+3, tertiery 5, cribriform, PNI. The margins were negative and so were the 13 nodes. I've been < .1 for 22 months. I was never incontinent but it took about 7-8 months for erections with the help of viagra. I hate cialis and viagra but still need it to this day.

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Great outcome both from a curative and side effect perspective. Thanks for sharing your experience.

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Profile picture for jayhall @jayhall

I had a RARP in May and they removed some of Lymph nodes on both sides. My surgeon explained that this was a necessary step as they send the Lymph nodes to be tested for Cancer in those cells to help determine Metastitis. Ask your surgeon if that's why they are being removed. I had swelling in those areas and some pain but nothing major.

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I had some pain in both sides of my groin for about 3 days. The swelling was not horrible and it went away after about a week. When you are discharged they will instruct you to walk around as much as possible even with the cath because it helps that fluid get out of your body.

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Okay, so I admit to some confusion here.
Is lymphodectomy and dissection generally a routine part of prostatectomy?
I'm getting RARP at UC San Diego in a month for capsular contained Gleason 8, PSMA showing no spread, and I see that my surgeon is also planning on doing that as well.

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Profile picture for sanDGuy @sandguy

Okay, so I admit to some confusion here.
Is lymphodectomy and dissection generally a routine part of prostatectomy?
I'm getting RARP at UC San Diego in a month for capsular contained Gleason 8, PSMA showing no spread, and I see that my surgeon is also planning on doing that as well.

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The majority of people I have heard from that had prostatectomy did not have lymph nodes removed unless it had spread. None were removed in my case.

I suspect if you’re Gleason eight or nine, there’s a lot higher chance of them wanting to do that As precautionary measures.

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Profile picture for jeff Marchi @jeffmarc

The majority of people I have heard from that had prostatectomy did not have lymph nodes removed unless it had spread. None were removed in my case.

I suspect if you’re Gleason eight or nine, there’s a lot higher chance of them wanting to do that As precautionary measures.

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Exactly. It is based on risk assessment of spread. In my case even though my Gleason score is relatively low, my GPS score of 47 is very high pointing to a very aggressive cancer DNA. That is probably why my urologist plans to remove some lymph nodes, but I will ask him anyway to explain.

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Profile picture for soli @soli

Thak you Jeff. I appreciate your input.

Yes, my GPS score of 47 shows my cancer DNA is the aggressive type, but currently it is Gleason 3+4, and only one out of 18 cores. Also a recent PSMA PET scan showed no metastitis. That is why I am questioning why we need to remove the lymph nodes. I have emailed my concerns to my Urologist, and hopefully he will answer my questions possbly when I see him just before the surgery.

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@soli From your original post: "Since I was recently d[i]agnosed with prostate cancer (Gleason 3+7, PSA: 14.5, and GPS score of 47), my urologist is . . . "

From the above, "currently it is Gleason 3+4," this serves as correction. The highest ("perfect") Gleason score is 5+5 = 10.

I wish you a successful surgery.

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Hi @vircet :

Oops, that was obviously a typo: I menat to say Gleasn 3+4 as I have mentioned in various previous posts.

Thanks for catching that.
I will try to edit and correct it.

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Sorry, I meant to say Gleason score of 3+4= 7, not Gleason 3+7 when I started this discussion thread. But, fortunatley, throught the discussions above I had correctly described my Gleason score as 3+4. I tried to edit my headline posting, but unfortunately the system did no allow me to.

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Profile picture for ucla2025 @ucla2025

My husband had his RARP in early June. His surgeon wanted to remove the six closest lymph nodes because one of them lit up on the PSMA he had done in March. We asked why the six instead of the just the one and he said there could be cancerous lymph nodes that didn’t show up on the PSMA and this concerned him because my husband is a Gleason 9. Sure enough TWO of the six removed were cancerous. It is my understanding that it is not unusual to remove the closest nodes if the docs have any concerns and also there are generally no lingering complications. My husband hasn’t noticed any problems so far. Consequently his treatment plan is more aggressive now and it all makes sense to us.

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Are they now recommending radiation and hormone therapy? My husband is in a similar situation. We are now facing the next step of photon radiation x 37 treatments and hormone blockers.

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Hi! Seems we are in the same boat so to speak. Yes, that is the recommendation. Doc wants another PSMA now so they know what to target with the radiation but we are being held up by the insurance company that requires another PSA before they will pay for the PSMA. So, we have a PSA test coming up next week and we go from there.

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