@melissa1234
Thank you, Melissa, for sharing this additional information about your daughter with me.
1.
My doctor once explained that while an AED is developed for a specific purpose - say, generalized seizures - it might still benefit patients with different seizure types. He gave me the example of Depakote, which is primarily indicated for generalized seizures, but some patients with only focal seizures have had excellent results with it. Finding the right AED requires a very individualized approach, as I've experienced myself.
By the way, 100 mg twice daily was exactly my dose when I was taking Vimpat.
2.
About the 24-hour EEG results, you mentioned that no focal seizures appeared, just generalized discharges. Did your daughter experience any déjà vu feelings during this EEG? As @jakedduck1 mentioned, many people with epilepsy have normal EEG results. I, for example, lived for decades with epilepsy without knowing it because all my EEGs were normal. As Jake suggested, getting to an epilepsy center would be ideal if possible.
3.
Unfortunately, you can have both seizures and PNES episodes, as I've recently discovered myself. As I briefly mentioned in an earlier post, after a strong complex partial seizure I had about three weeks ago, the episodes that followed - which I initially thought were simple partial seizures - were actually PNES episodes. These episodes felt exactly like my simple partial seizures, but the hospital EEG showed no seizure activity in my brain during those episodes.
4.
About catamenial seizures, the best approach would definitely be having your daughter's neurologist work together with a gynecologist to prescribe the optimal treatment for her catamenial seizures. If the current neurologist isn't addressing this, I would consider seeking another doctor if I were in your position.
Have you been able to contact Mayo Clinic for an appointment?
Chris