Thanks for the reply. With all of those recurrences and new strategies, the good news is that you've survived now 15 years following diagnosis and RP. That is great and encouraging news. I know there were lots of inconveniences, frustrations, and times of hopelessness, but you made it through - and that is great.
I guess the news for me is that it will always be "on my shoulder" as I live my life..."tapping me" to say "I'm baaack".
I had some initial genetic screening that stated that I have no cancer genes in me of any kind, but I am also waiting on results of my after-the-fact Decipher test that tests for those 22 prostate-specific genes and mutations. Half of them were not in my more basic genetic screening. I hope my Decipher score is good. Other than Type II Diabetes, I have not had to have a constant awareness and worry about anything health-related in my life. This will be very trying...always thinking and wondering "when will it come back?" Makes me wonder why I even bothered have the RP surgery if it comes back. It just proves that the DaVinci Robotic RP system is not the "be-all" surgically perfect method that my urologist claimed. My dad lived to 99 years 10 months WITH prostate cancer...had it for 15-20 years. My grandfather lived to 96 years old WITH prostate cancer. He had it for about 15 years, maybe longer. Neither had the RP surgery. They had problems, but at least they were continent and had a sex life as long as they wanted it.