@becsbuddy...thanks for the info. How long were you on 14 mgms before you dropped to 13 and did the pain come back right away? My rheumy is back from hols and I have an appt for tmo, thank goodness! Any info you want to pass on, I would appreciate getting. Again, my thanks for replying. It is a comfort to know that there are humans out there who have this dreadful disease! One doesn’t want to complain, and it’s a real blessing to have friends who have a sense of humour!!! For that, I am so lucky. Good luck with your next dr. I notice you said ‘neurologist’ and not ‘rheumatologist’. Didn’t realize that they could handle PMR as well.