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DiscussionI have chronic pancreatitis and the doctor is suggesting surgery
Pancreatic Disorders | Last Active: Oct 14, 2025 | Replies (8)Comment receiving replies
Replies to "I am having a Total Distal Pancreatectomy and Splenectomy tomorrow @ Mayo. I have idiopathic chronic..."
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I had the surgery 2 weeks ago. The difference is night and day. Surgeon told me that my pancreas was loaded with stones, was hard, lumpy, and it was inflamed at the time of surgery. He ended up having to abandon the robotic assist and made a 6 inch incision as there were stones throughout the neck as well and he needed to see it to cut it off at the right place. I can say I felt immediate relief. I am so grateful for his expertise and I am so glad I pushed for surgery over trying to stent again. He assured me that with the amount of stones I had stenting would not have been helpful. The spleen was over 2x's the normal size but neither had progressed to cancer. I had a week-long hospital stay, am off work for about 1 more month, but I am feeling so much better. My son can't believe what a difference it has made. He said you just had major surgery and you look sound and move better and you stopped being nauseated and no vomiting. This episode of illness may actually be over! He's 17 and he has seen what this horrible disease has been doing to me for years. I just want to reiterate that we are all different, my case was not normal, my bloodwork didn't show my illness, my scans didn't show how bad it was, and I kept being told it must be fibromyalgia, but it wasn't. What works for 99% of us who have this awful ailment was not effective for me. So, I suggest you advocate for yourself, you are the only one who knows you and your body. Praying you get relief soon.