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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
Hello everyone, well after feeling good about getting down to 1mg I too have had a relapse, after being on 1mg for around 2 months and slight pain in my shoulders it has now turned and I have unbearable pain in my neck shoulder and arm. The pain is constant but I have burst of pain so bad I can hardly stand it. Is this normal, as previously I had the pain all the time and once I started on Prednisone it lessened to a slight ache. I have increased to 2mg but has not made any difference and the pain is wearing me down...don't really want to push the prednisone to a higher dose, can anyone recommend some other alternative. Pain relief is not making any difference.
Replies to "Hello everyone, well after feeling good about getting down to 1mg I too have had a..."
Hi Linda,
I never had the burst of pain you are describing. I will tell you, however, that my rheumy at Johns Hopkins put me on 200 mg. celebrex to help with the pain in tapering off pred. I have now been off prednisone since April and I'm about 90% pain free most days.I now take 100 mg every other day to keep the PMR under control. I wish you the best and prayers your way to find comfort.
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@lindapc, I'm sorry to hear about the new pain in the neck, shoulder and arm. Is the pain just on one side for the shoulder and arm? I would talk to your doctor to see if it may be something else like a pinched nerve. My PMR has generally been all over the body. Hoping some other members can share their experience with you. There is another discussion which may be helpful for the pain you are describing.
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
— https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/