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Profile picture for gmaof3 @gmaof3

I’ve had Crohn’s since 1985. I had a resection then with ileocecal valve removal. It’s been a wild ride lately. Through my colonoscopy last year, I found out I had an active flare in my small intestine. No symptoms though. There was evidence of scarring from another unknown flare. No fevers or bleeding. I personally think the scarring was from C-Diff that stuck around for close to a year. It was evil and the worst part happened in October when the hurricane came through and knocked out our power for close to a week.
For my Crohn’s flare, I started on Skyrizi in February and three days later, C-Diff was back or maybe it never left.
I finished treatment for that in May while continuing my monthly infusions of Skyrizi. I’m getting ready to take my third maintenance dose of Skrizi. I’m praying that it helps me feel better.

This is just a snippet of my story. If you hung in to the end, you did good!

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Replies to "I’ve had Crohn’s since 1985. I had a resection then with ileocecal valve removal. It’s been..."

@gmaof3

I've had U.C. since 2020, and it has been a rough five years, but I am taking it strides. I am going to try a new infusion medication this month hopefully can better treat my constant flare-ups. I always look forward to infusion appointments, I have a designated snuggly blanket that I always bring and my backpack filled with yummy snacks and activities to keep me busy.