← Return to How to address PMR pain while decreasing prednisone

Discussion
Comment receiving replies
@johnbishop

Hello @beckie, Welcome to Connect. Thank you for the private message. I thought I would answer your private message in this discussion so that other members can see your question and offer suggestions and share their experiences with you. Just click the View & Reply button on the email notification for this message and it will take you to the discussion.
-----------
Beckie's message - I began my journey with orthopedic who did many tests, and diagnosed pinched nerve in lumbar area but could not determine why I was having such pain in shoulders and arms and neck. After lab work he referred me to rheumatologist who diagnosed PMR. After a week on prednisone I am sooo much better, I still have pinched nerve in back to deal with, but that pain is not nearly as bad as the PMR. Has anyone else experienced back surgery while dealing with sudden onset of PMR? This is all new to me. I'm just so thankful to the surgeon for going the extra mile to get me to rheumatologist. I had never heard of this disease before few weeks ago… Thanks for any advice you may have.
-----------
First let me say I am really happy to hear your PMR is better since being on prednisone. Can I ask if your rheumatologist discussed tapering off of prednisone after you start feeling better? I've had 2 instances of PMR which is currently in remission. The first time it took about 3 years to taper off of prednisone. The second time it took about a year and a half. I do believe diet - eating healthier has helped me control the PMR some. There is also another discussion you may want to join that may be helpful for your pinched nerve in your back.

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

@artscaping @jenniferhunter and others may have some other suggestions on the back pain and pinched nerve.

Thanks for contacting me!

Jump to this post


Replies to "Hello @beckie, Welcome to Connect. Thank you for the private message. I thought I would answer..."

Thanks so much for your quick reply. My rheumatologist did discuss tapering off prednisone to a maintenance level eventually, but I am still so new to the treatment we have not talked numbers..He started me with 20 mg per day. Finding this Connect has been so encouraging, and I appreciate your help. I think I have consulted "Dr. Google" too much as it gives such a dire outlook for long term prednisone. However at this point for me it is a miracle drug. I've never experienced anything like this. My story sounds so similar to other posts- age 69, active exerciser, then sudden crushing pain and weakness. I will have to wait and see what eventually is done about pinched nerve...At this point I just feel so blessed to out of that excruciating pain for the most part, though mornings are still bad. Thanks again.