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Profile picture for elainekb4 @elainekb4

I was 39 when the first tumor was discovered in between my small and large intestine. Surgery removed it. 10 years later a couple showed up in my breast. Since then in the past 16 years all was pretty quiet then I developed a tumor in my back, my leg, and now activity is showing something in a couple of bones. It is hard to find a neuroendocrine specialist. But do find one as they are more aware of this type of cancer. I am now 66 and still feel good. And still learning. You have this.❤️ Just make sure you keep informed and if you can, go to Mayo if you ever want a second opinion. They are amazing!

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Replies to "I was 39 when the first tumor was discovered in between my small and large intestine...."

Hello @elainekb4 and welcome to Mayo Connect. I appreciate you sharing your NETs journey. Your story points out that NETs is a different journey for each person.

What treatments are being discussed for the current tumors in your bone?