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How to address PMR pain while decreasing prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)
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@kirby

I was put on 30mg prednisone for one week, then went to 20mg for a week and then the dosage was lowered each week /month over 9 months. As well my rheumatologist has me on 200mg hydroxychlorquine sulfate. I was on 2 a day and went back to one a day. After 2 years felt poly was returning and went back to two a day. So far seems to do the work. Have CRP tested every 6 months with regular blood work. When first diagnosed it was 47.

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John, Volunteer Mentor | @johnbishop | Aug 20, 2019

Hi @kirby, Welcome to Connect. Thanks for sharing your PMR journey with us. It can be a difficult one. My PMR is currently in remission. The first occurrence lasted 3 years before I was able to taper off of prednisone. After a 6 year remission it came back and I started on 20 mg prednisone again and was able to taper off in 1-1/2 years. I'm hoping I get another 6 year break but will have to wait and see. I do think that exercise and diet do help. The diet part of eliminating foods that cause inflammation (and sugar!). I struggle with that but keep trying to focus on it.

Do you do any additional things to help relieve the symptoms of PMR?

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