Newly diagnosed with prostate cancer and still gathering information
I was just diagnosed within the last two weeks. My PSA is 4.1 which I’m thinking isn’t that bad. I was not prepared for the results of the biopsy. Gleason 4+3 intermediate unfavorable. 13 of 15 cores positive. The urologist is favoring surgery. Second opinion also surgery but wants a Pet scan which is in the process of being scheduled. I am in Alabama and expect to be treated here. I am still in the asking questions and doing research stage, at this point I don’t know until after the pet scan if I have any options. The information on the post operative effects ofsurgery goes from mild to wild, I’m concerned. Anyone who can share their experiences would be appreciated.
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Your detailed commentary here is especially helpful to me. I am seeing my urologist in the morning to go over repeated blood work and the MRI. I know from the MRI report that I have one focal lesion contained with my prostate. I want it removed as quickly as possible. I will try to convey my desire to bypass a biopsy, just get one with the surgery!
I was a 4.01 with a Gleason score of 4+3=7, 13 out of 15 cores positive with cribriform. 2 weeks post surgery.
Thank you for sharing. Glad you had the surgery, Bruce, I hope that I am a candidate for RARP asap. I hope your journey forward is particularly positive!
I hope to get scheduled for RARP this morning - that is my goal, anyway!
Did you get a PIRADS score for the lesion? If it’s a four or a five, then it could be cancerous and need to be treated right away. If it’s a three or less than it usually is not be cancerous. Even a 4 is on the border, a biopsy would give a lot more information.
You may not have cancer, Removing your prostate without more information would go against medical guidelines.
Hopefully your urologist can give you more information so you can make a sensible decision about what to do. It’s a little early to decide to remove your prostate. That will dramatically affect your life, a lot more than other possibilities.
I have no idea, I’m not a doctor. But it seems to me that for the # of positive cores, that radiation not an RP would be the choice. After all, why do thru the risks of an RP to then have to do radiation anyway?
As for one lesion, you need to wait for the biopsy and PSMA Pet scan. You may be in the lucky situation, where you don’t need to have an RP and risk incontinence, rectal issues, and ED. Just saying.
I’m getting prepped for my Proton Therapy with Gleason 8, localized with no Extra capular extension, and clean PSMA. I know the possibility of recurrence later but am willing to kick the can down the road. Personally I question any RP.
My insurance company denied my decipher test as medically unnecessary! *• I am 4+3 so I’m getting it either way and will fight with insurance to pay it.
@shayes914
Contact Decipher and advised insurance will not pay for it.
Decipher will offer you reduced costs and if needed set up a payment plan.
I had a RARP 23 months ago. It went well and my follow-ups have been an undetected PSA level. The incontinence was an issue. At three months, after doing pelvic floor exercises, progress still seemed frustratingly slow. I was reading everything. I came across an a brief mention of someone using his Concept II rower and finding it very effective. I too have that rower and started to use it. I experienced faster and continuous improvement in my recovery.
A prostatectomy will remove the cancer. You may or may not have a recurrence later, but it will be treatable so not a death sentence. The prostatectomy may result in incontinence and or erectile disfunction. There are treatments for both and if the treatments don’t work, you can get an inflatable penis prostheses and an artificial urinary sphincter. I’ve gotten both in a single surgery and just wish that I had gotten them sooner. Remember that after having a prostatectomy, you can still have sex and can still have orgasms. Most doctors advise Tadalafil 5 mg daily after the surgery to keep blood flowing to your genitalia. The old “use it or lose it” applies.