Hi @jules11 I live in Wellington New Zealand and have joined this wonderful group to try to understand this condition, I have found it very helpful and it has given me emotional assurance as I got very depressed with this. I was diagnosed back in July last year and are now on 1mg. I was instructed by my Doctor to reduce 1mg per month once I got to 10mg. I did okay, like you just had a bit of stiffness in my shoulders and hips, when I got around 4mg I had to listen to my body as the stiffness was still there and I waited until I felt almost pain free before I reduced, it was normally around 6 weeks rather than 4. I am reluctant to go off the 1mg as I had a bit of a flare up when my doctor changed my blood pressure pills, Im slowly feeling better but still have days where the stiffness and pain in my shoulders is quite bad. I feel that as long as you have symptoms you have to listen to how your body is and respond when your feeling okay. I know we all want to get off this drug and go back to normal but feel is it worth the risk of a flare up and then have to go back on a higher dose. I think patience is the name of the game, good luck.

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