@amygirl: If you have a NET diagnosis and biopsy has revealed K67 stain “Stage & Grade”, then you would benefit from a treatment consultation from a NET Oncologist Expert to determine your best treatment route. NET cancer has drastically different growth rates, usually slower growth and we aim for stable growth patterns. It is not like any other types of cancer.
At your young age you must educate yourself on this type of cancer and understand that you need to be proactive with controlling tumor growth and cancer metastases to give you best prognosis (I am 80 but have found ways to enjoy a good quality of life).
There are many successful reports from NET treatments. The first is usually the Lanreotide 28 day shot that offers symptom control and relief. This is an effective tool as well as regular blood tests and scans to help your Oncologist with additional treatments when necessary.
I encourage you to join virtual NET support groups that will prove to be allies offering answers to your questions, recommendations from patients, and new researched treatments available. Expert Oncologist’s lectures are available on a zillion related topics that will expose you to the “lingo” that docs and patients will use. The HOPE is contagious and YOU are not alone on this road of Neuroendocrine Cancer. My best thoughts are with you! dbamos1945