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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
I feel so similar to you! I started on 20mg of Prednisone 18 months ago. Im now down to 6mg. But, I still feel a lot of discomfort, especially in my legs. I find myself taking Tylonal 1 at least once a day. My rheumatologist advised that when I have a relapse, it is totally safe to go straight back to 20mg, but only for 2 or 3 days, to reset everything, then back to where ever I was. I havent dont this yet, but am very tempted. I only reduced to 6 from 7 one week ago, and now wonder if I should have. But, I do notice each time I reduce that I have a week or so of not feeling well, and then it seems to adjust. Good luck to you!
I have a question for others as well......For those of you that have reduced to 3mg or less, do you still feel side effects? I must say, I dont think I have any now at 6mg, or maybe I am just so darned used to it I dont notice! My thought is, that if I get down under 5mg, that maybe it doesnt matter if I have to stay there??? thoughts??
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Hi @ sallygoose - I started on 20mg just about a year ago and are now down to 1mg, I still have side affects and have felt quite unwell, not from the PMR but the side affects. I still have a little stiffness in my shoulders and legs but not that bad that I have to take pain relief just uncomfortable and like you it usually goes away within a few weeks if I have no stress. But as most people say, we are all different and not everyone has the same side effects or even gets them. Good luck with reducing and its a decision that you have to make about staying on the prednisone but make sure you are well informed about the affects it has on your body that you do not show up as a side effect. My Doctor was not great in informing me but I did alot of research on the internet and also joined this group which has helped me to understand what parts of your body can be affected with this drug.