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DiscussionKevzara and Prednisone Tapering before and during Kevzara
Polymyalgia Rheumatica (PMR) | Last Active: Sep 28 11:02am | Replies (82)Comment receiving replies
Replies to "I'm wondering about tapering off prednisone when I'm on Kevzara. I've been on Kevzara for 5..."
I had a similar experience with my Rehum, except he wanted me to go from 8mg to “0”.
Not me……..I self tapered with my PCP approval.
I am at 5 months Kev now. I started my taper at 8mg, was at 3 mg by 6/15 (16 wks on Kev). I did self taper to “0” by 7/13. I did it in .5 increments.
I was having no symptoms, exercising more.
I 🛑 prednisone on 7/13.
Note: I do supplement with 2 Tylenol for Arthritis when weather is hot/humid (today total 165%) or I have overdone it. I traveled to Alaska recently and needed no supplements.
As everyone on this blog says, you do what you “feel” works for you. Good luck
Diagnosed with PMR in 2011. . Because of a flare in late fall of 24 my rheumatologist raised my prednisone. When I got to 10mg I started KEVZARA. I held at 10mg for a few weeks then tapered 1mg/week. to 3and held for a while then dropped to 0. That was the first of June. I had also had a morning cortisol test at 3mg and I was in the normal range. After the test is when the rho rheumatologist told me to continue with the taper.
So if concerned about adrenal issues ask for a morning cortisol test.
That sounds risky to me. The Kevzara should prevent a flare of your PMR, but you could have adrenal issues by dropping from 3.5 mg down to 0 in just 3 weeks or so. I take Actemra, which is very similar to Kevzara, and my rheumatologist had me taper 1 mg every 4 weeks once I got to 5 mg. That worked very well for me. By the time I got down to 2 mg I felt like the prednisone wasn't causing any side effects.
I like to think of it like a plane landing. Do you want your plane to glide in low and slow on a long flight path, or do you want it to stop suddenly and drop to the ground from several thousand feet up?