Connect
← Return to Dazed and Confused
Discussion
Prostate Cancer | Last Active: Sep 17, 2025 | Replies (38)
Comment receiving replies
I am so sorry that you too have to go through uncoordinated care 😔 I do not know if this will make you feel better but my husband is having "care" at CCE center (UCSF), and care coordination so far is far from stellar.
We can not even make appointment with oncologist because my husband does not have metastases (????) . High risk patent, gleason 9, cribriform, IDC , EPE and perineural invasion inside the gland and iffy margin is denied access to oncologist ! 😖 Urologist is supposed to follow his case at CC of Excellence ???
Replies to "I am so sorry that you too have to go through uncoordinated care 😔 I do..."
Connect
That is TOTAL BS!! I guess MO is considered the ‘last stop’? I would suggest a consult with an RO at the same hospital - try to get a younger member of the staff since they are much more current on ADT drugs/combos than their older counterparts.
If you can’t even get this referral, just get the hell out and go somewhere else. The surgery is behind you and you have all the patho you need to present your case to a different hospital.