@rachelp What doctors were you seeing? I went almost a year with no diagnosis except that my gallbladder didn’t look good so they removed it. No one ever mentioned inflammatory markers. It wasn’t until I was taken to the ER in bad shape that they looked for inflammation and, boy, did I have it in my brain! A neurologist in Denver is treating me now. Everything affects my quality of life! Guess I’ll just have to accept this new 80% life.
I’m so glad you got to Mayo Clinic. Are your records sent to the local MDs who didn’t believe what you were saying? My MD gets everything so she knows what’s going on.
Long road.....