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@rachelp

You are so right about the markers, and I am grateful for your comments. My inflammatory markers were, initially, high. After a short period of treatment with prednisone, they dropped into the normal range. After about six months of reduction in dosage, as the dosage decreased, the pain increased. My doctor(s) would not accept that the PMR was still alive and well in my body because the markers did not reflect that. After a year (and four opinions later), I went to the Mayo Clinic in Jacksonville, FL. Within a short period of time, the rheumatologist told me that I was one of the people for whom the markers had no meaning. She increased the prednisone, and the pain went away.

Because of what I experienced, I have often wondered how many patients have an autoimmune disease which is affecting their quality of life, and it is going undiagnosed because some doctors are depending entirely upon elevated markers for inflammation to make their diagnosis.

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Replies to "You are so right about the markers, and I am grateful for your comments. My inflammatory..."

@rachelp What doctors were you seeing? I went almost a year with no diagnosis except that my gallbladder didn’t look good so they removed it. No one ever mentioned inflammatory markers. It wasn’t until I was taken to the ER in bad shape that they looked for inflammation and, boy, did I have it in my brain! A neurologist in Denver is treating me now. Everything affects my quality of life! Guess I’ll just have to accept this new 80% life.
I’m so glad you got to Mayo Clinic. Are your records sent to the local MDs who didn’t believe what you were saying? My MD gets everything so she knows what’s going on.
Long road.....