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Monica Rose avatar

Anyone else with sarcoma that originated in the brain?

Brain Tumor | Last Active: Sep 9 12:40pm | Replies (4)
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Thank you! I’m doing ok post-surgery, having lots of side effects from meds and also been having seizures that have been hard to control. Good days and bad days for sure! I’ll be going to Rochester, not sure exact dates but within the next couple weeks!

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Replies to "Thank you! I’m doing ok post-surgery, having lots of side effects from meds and also been..."
Colleen Young, Connect Director | @colleenyoung | Aug 26 10:32am

I'm assuming this might be your first visit to Mayo Clinic. You will find some helpful travel tips and how to prepare in the Visiting Mayo Clinic support group here: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

If you're bringing your family, you can even find tips on activities for kids and more.

I'm sorry to hear about the seizures. That must be unsettling (to say the least), not knowing when they might happen, etc. While @karinav4236 has a different type of brain tumor, she started this discussion that you might wish to read or comment on.

- Diagnosed with Meningioma: Worried about another seizure https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma-on-011325/

I'm also tagging @maraissteyn, who I believe may have a similar experience with a brain sarcoma that she posted about here:
- Was diagnosed with gliosarcoma while taking part in a sporting event https://connect.mayoclinic.org/discussion/was-diagnosed-with-bliosarcoma-while-taking-part-in-a-surfski-qualifyi/

Monica, let me know if you have any questions so I can help get you connected with members like you.

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