Hello @billu1, Welcome to Connect. There is no special support group for idiopathic neuropathy but there are 120+ discussions on idiopathic neuropathy in the Neuropathy Support group. Here's a search link that lists the different groups if you would like to scan through them to see what is available - https://connect.mayoclinic.org/search/discussions/?search=idiopathic%20neuropathy.

I didn't see any members who have posted about Rhombencephalosynapsis (RES) but hopefully someone with experience will see your post and respond. I did find a recent research paper if you haven't already seen it.
-- Rare case of rhombencephalosynapsis (RES); Case report and literature review
https://www.sciencedirect.com/science/article/pii/S2666459325000253
The Foundation for Peripheral Neuropathy is a great source of information for living with neuropathy - https://www.foundationforpn.org/living-well/.

What is the most difficult symptom for you to manage?

Falling, I have moved from a cane to a Rolator for long distances and nothing while at home, (I live in a small house) most of the time. I have had an EMG, and after test the Dr. said, "you have neuropathy" and I felt like saying "Duh". but refrained since I already had one a while back. RES as identified is a very rare genetic disorder. It is in back part of brain. and it affects motion and stability. There is no treatment for it except doing a spinal Tap.