I am in the process of being tested for this as well and will definitely follow up with you .

Hi @eghclark and @jennyt23, I moved your messages to this discussion in the Autoimmune Diseases group
- Scleroderma (Systemic Sclerosis): Anyone else? https://connect.mayoclinic.org/discussion/sclerodermasystemic-sclerosis/

I did this so you can easily connect with other members living with scleroderma like @kimberlyf @shiprock @robinlundblade @andielars25 @sonnyforee10 @2beaformerredhead @gila @csmirat and many others.

See all scleroderma-related discussions: https://connect.mayoclinic.org/search/discussions/

@eghclark, this sounds like a new diagnosis for you. Can you share a bit more? What symptoms led to the diagnosis? How are you doing?

@jennyt23, what testing are you having done? What led to your doctor suspecting scleroderma? I know this is scary.

Me too. There are 2 types I have systemic how about you? What new symptoms are having thinking it’s getting worse? I wish I could tell you more about but I’m still figuring it out too. Keep in touch and let me know about my questions. Thanks

@eghclark Good morning, I am so sorry to hear that! I too was diagnosed with Systemic Sclerosis a couple of months ago. I've been battling strange symptoms for a few years now. My new rheumatologist prescribed Mycophenolate for now. I have not noticed any real difference, but she believes it'll be a long term medication. My worse symptoms are burning in my head, mouth and legs. What symptoms are you dealing with?
Have you checked out the National Scleroderma Foundation? They have lots of information.
I pray you find some peace and comfort.